MACULAR DEGENERATION: WHAT I HAVE LEARNED

Since my blog about my advancing condition of macular degeneration, many people have asked for more information about this condition.

It is defined as a progressive eye disease that affects the tiny, central part of the retina called the macula at the back of the eye and can cause loss of central vision. It is the leading cause of vision loss in people over 40. (https://www.macular.org/about-macular-degeneration)

There are two types: wet and dry. There is no cure at this time, but it can be slowed down through injections in the eyeball. AMD only affects the central part of the vision so one can see peripherally. It does not lead to complete blindness but can affect one’s ability to drive, cook, do close-up work, or recognize people.

To help prevent or slow down the course of AMD, it is important to take AREDS vitamins and eat green vegetables, especially kale. (I have found some delicious ways to fix kale.)

A most informative video about AMD through the words and eyes of men and women with varying degrees of this disease.

What I have learned:

  • No matter the loss of sight, I am still me.
  • I can adapt to anything
  • Blessings are not to be taken for granted
  • Use time wisely
  • Finish the unfinished projects
  • Be a role model for others
  • It is not what I see with my eyes that is important, but what I see with my heart and soul.

I used to read 100 books a year. Now I struggle to read one a month. I must use a large font on my e-reader which “just doesn’t seem the same.” To my fellow authors, please know I have your books on my e-reader but I must work through some sadness and frustration that I cannot pick up a book, feel its crisp (or sometimes worn) pages, and feel its lightness or heaviness in my hands. I am grieving the loss of my friends, the printed books…yes, my books have been my friends since childhood. I am learning to accept my book friends now in their new form. I appreciate your patience and understanding. As Schwartzenager said, I’ll be back.

To C.S. Boyack, I am almost done with your book, Swamp. FYI: I am enjoying it.

13 thoughts on “MACULAR DEGENERATION: WHAT I HAVE LEARNED

  1. Oh, Karen, you are an inspiration. Thank you for sharing as you have and for embracing life’s challenges with dignity and courage. My vision is not great, but I do not suffer as you do. My hurdles are different, but your underlying message applies to all. God bless you. ❤️ (BTW, for some reason, for the last several months, I have not received notice of your posts. I’ve missed a lot and will catch up now.”

    Like

  2. I’m saddened to hear this news, Karen. I had surgery for detaching retina years ago and have early macular degeneration now. I’m taking the vitamins and hope they help. Sending virtual hugs to you.

    Harriet Hodson

    Like

  3. So sorry you are dealing with this, Karen. My brother has been living with this for several years and still is able to drive. I know he does a lot of supplements too. It would be hard to let go of print books, but we are so luckily to have eBooks and audio. You are in my prayers xo

    Like

  4. Karen – I am so sorry to learn of your condition. You have an amazing attitude. I also have vision problems. My condition is called lattice which causes thinning of the retina. I’ve had one detached retina and one torn. Both times repaired with in-office procedures. Still, my vision isn’t what it once was. Like you, books are my friend. I am thankful that we have alternatives these days in the form of eBooks and even audio.

    Blessings to you.

    Like

Leave a reply to D.L. Finn, Author Cancel reply